lots of repetition from older posts–just had to write about it again to remind myself
I have been told I’m cured of cancer, but have also been told that the 5-year-rule doesn’t necessarily apply to lung cancer. So…..every time I fall or get dizzy I assume it’s metastatic cancer gone to my brain. Every time I have trouble breathing, I assume it’s come back. Any ache in any part of my body most surely is metastatic lung cancer. Every cough….well, you get the gist….I believe I’m a walking petri dish waiting for something to develop. (It has taken years of therapy to manage this anxiety but I’m finding fear trumps sense most times)
Some may remember, six months ago I was miffed at the radiologist, or the imaging center, for losing my scan. I sat for two hours in a little room at my oncologists office waiting for words I had desperately wanted to hear. I received a two paragraph response within 5 minutes of finding my scan. How can a radiologist read a scan that quickly?
Anyway, most of us probably know of the mega-conglomerate-medical-groups. We’re sold on the fact that we can go to any doctor in their system and they have access to all our health records. We can even go online and look up most, but not all medical information. You know, some of it’s too much for our little ol’ brains to comprehend so they don’t share all information.
My oncologist works for one conglomerate and I have been getting my scans at the competing conglomerate. She assured me the conglomerations communicate with each other. Ha!
I have to reiterate that you must be your own health advocate.
I will never forget what it felt like to recover from the easy Video Assisted Thoracic Surgery (VATS), not the kind where they split ribs, but painful just the same. Every time I do something while I huff and puff, I’m reminded that I no longer have the lung capacity I used to have–add to that, I have asthma–add to that, I’m out of shape–my fault. 😀
I became a little lackadaisical in my quest to keep my doctors accountable and on their toes, and was left with six more months of the scanxiety hell.
I’m having my next scan at the conglomeration my oncologist is affiliated with. I armed myself with my stack of cds full of previous scans, including the last one with the two paragraph report. You can imagine my shock when the records lady told me that my last ct scan had 500 images and that it would take a while to copy onto a cd.
Five hundred images! Did they even look at the images of my spleen, liver, and right lung? The areas which we were watching? I don’t know. I wasn’t able to hover over the radiologist to make sure they did their job. All I could do is tell my oncologist that I had lost all confidence. All the mental therapy I have had has only made my anxiety marginally tolerable this time.
I’m thinking this is all due to one person not fully doing their job (in my opinion).
Again, make sure you are your own advocate—and quit smoking. 😀